Monthly Archives: December 2015

A Letter to Patients with Chronic Disease – Dr. Rob Lamberts

A very interesting post written by Dr. Rob Lamberts in his blog Musings of a distractible mind, which has generated a lot of discussion around the web, as well as personal and touching stories shared by readers in comments. A … Continue reading

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Tell your story

Originally posted on Unlocking Words:
I think we all have things we have difficulty talking about but which are hurting us or holding us back. Even if its something that sounds small or something that happened long ago and even…

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Eds facts awareness

Some facts about EDS.

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An Introduction to the Hypermobility Type of Ehler’s Danlos

Originally posted on Chronically Ridiculous:
Ehler’s Danlos is a group of inheritable connective tissue disorders related to the formation of collagen. EDS was named by two physicians, Edvards Ehlers and Henri-Alexandre Danlos, in the 1900’s. Hypermobile Ehler’s Danlos (hEDS) is the…

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The Role of Narrative in Healing (Part-2)

How the book “Narrative medicine: honoring the stories of illness” by Dr. Rita Charon helped me in healing myself. Continue reading

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An Email for Raising Awareness about Ehlers Danlos Syndrome

An email written by blogger hejyork to her friends and colleagues to increase their awareness about Ehlers Danlos Syndrome.   Source: Ehlers Danlos Syndrome

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What they didn’t tell me about Hypermobility

Originally posted on Misadventures of Donau:
Before getting too deep, let me mention that Hypermobility is not necessarily uncommon, but those who suffer from pain brought on by the condition are very few and far between. So what IS Hypermobility?…

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Protect your arms and hands

Joint hypermobility syndrome (JHS) affect the connective tissues (the stuff that holds us together and binds one thing to another in the body) of the body and leads to multi-site painful conditions. In particular, JHS causes laxity of ligaments (the … Continue reading

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Video Link: Struggling to be me with chronic pain

 A 10 minute video on living with chronic pain. The script is drawn from peoples’ own words about what it is like to live with chronic pain and is performed by an actor. The source material is from 77 qualitative … Continue reading

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The Role of Narrative in Healing (Part -1)

Honoring the stories of illness | Dr. Rita Charon* | TEDxAtlanta

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