Video Link: Struggling to be me with chronic pain

 A 10 minute video on living with chronic pain. The script is drawn from peoples’ own words about what it is like to live with chronic pain and is performed by an actor. The source material is from 77 qualitative studies exploring the experience of over a thousand adults with chronic musculoskeletal pain. The project was funded by the National Institute for Health Research Health Services and Delivery Research (NIHR HS&DR) Programme (UK).
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About Hypermobility Syndrome India/Viv

I an an Indian woman with Ehlers Danlos Syndrome Hypermobility Type (EDS-HT), also known as joint hypermobility syndrome. Although I have "suffered" from this disease all my life, I was diagnosed at 38 years, 2 years after my child was born. My work mainly involves being a mom to my beautiful and compassionate child. I also write and work from home in the field of science. I aim to raise awareness about EDS-HT, chronic pain, invisible illnesses, mental illnesses and invisible disabilities through my blogs. Viv (Latin root, meaning Life/ Alive) is my blogging pseudonym and alludes to my continued endeavor to rediscover my life and its meaning.
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