Monthly Archives: January 2016

Reblog: Something to think about

“A good doctor isn’t the one who knows more, who has read every medical paper ever written some or has an arms length of initials, after their name. Without a doubt, knowledge means a lot, but it makes them knowledgeable, … Continue reading

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Link: Too Tired: EDS and Fatigue

Chronic pain and fatigue are two most severe problems present in EDS-HT patients that affect daily life considerably. Many relevant studies related to fatigue in EDS-HT and management strategies are enumerated and referenced in the presentation, “Too Tired: EDS and Fatigue” … Continue reading

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Continuing Medical Education (CME) in Humility and Healing

“Science may have found a cure for most evils; but it has found no remedy for the worst of them all – the apathy of human beings.” ― Helen Keller My thoughts related to my invisible illness often revolve around … Continue reading

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The Privilege of Independence

Originally posted on Chronically Ridiculous:
When my parents dropped me off for my first day of camp when I was five they expected it to be tough. It was tough, but just for them. I was ready to leave and…

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Healing the bitter core

In my previous post, Losing my cores, I wrote about the devastating effects of my chronic pain and disabling condition, particularly on my core psychological state. I believe that the assaults on my psyche have been in phases and in … Continue reading

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Marfanoid Habitus: My long arms of law

You won’t see it unless you look for it. True for most of the subtle signs of hypermobility syndrome (EDS-HT).An important sign is a mild expression of marfanoid body type, one of the features that EDS-HT shares with other hereditary … Continue reading

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