What makes a seemingly well person with Joint Hypermobility Syndrome so sick?

“Ehlers-Danlos Syndrome: A Multi-dimensional Disorder” by Dr. Clair A. FrancomanoA very informative talk on all the things that go wrong in the body of a person with Joint Hypermobility Syndrome (JHS, aka EDS-HT). A rather comprehensive talk of 37 minutes, but it covers almost all the important things related to this condition. This is a great presentation for anyone wanting to know about this disease. It contains some medical terminology, but is fairly easy to understand in most parts. So many things are wrong in my body that when someone asks, I really don’t know where to begin. If you know someone with JHS/ EDS-HT, this talk is a must watch.

I also found it interesting to know about many of the things that stand in the way of acceptance and understanding of the condition by the broader (non-EDS expert) medical community.

Below is another comprehensive talk focusing on what is needed to be done in order to change the perception of this disease among the medical community.




from Blogger http://ift.tt/1W3jcIA


About Hypermobility Syndrome India/Viv

I an an Indian woman with Ehlers Danlos Syndrome Hypermobility Type (EDS-HT), also known as joint hypermobility syndrome. Although I have "suffered" from this disease all my life, I was diagnosed at 38 years, 2 years after my child was born. My work mainly involves being a mom to my beautiful and compassionate child. I also write and work from home in the field of science. I aim to raise awareness about EDS-HT, chronic pain, invisible illnesses, mental illnesses and invisible disabilities through my blogs. Viv (Latin root, meaning Life/ Alive) is my blogging pseudonym and alludes to my continued endeavor to rediscover my life and its meaning.
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