Not just the joints: A review article on the comorbidities of JHS/HEDS

Ehlers–Danlos Syndrome – Hypermobility Type: A Much Neglected Multisystemic Disorder

Yael Gazit, Giris Jacob, and Rodney Grahame.

Excerpt from abstract:

Throughout the years, extra-articular manifestations have been described, including cardiovascular,
autonomic nervous system, gastrointestinal, hematologic, ocular, gynecologic, neurologic, and psychiatric
manifestations, emphasizing the multisystemic nature of EDS-HT. Unfortunately , EDS-HT is underrecognized
and inadequately managed, leading to neglect of these patients, which may lead to severe disability that almost certainly could have been avoided. In this review article we will describe the known
manifestations of the extra-articular systems.

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About Hypermobility Syndrome India

I am an Indian woman with Ehlers Danlos Syndrome Hypermobility Type (EDS-HT or hEDS). I have been living with this disease all my life, and fighting the manifestations blindly without knowing why my body was a living demo of textbooks of different branches of medicine. Getting a diagnosis at 38 years of age opened up the path for my emotional healing. I aim to raise awareness about hEDS, chronic pain, invisible illnesses, mental illnesses and invisible disabilities, and share my experiences through my blogs.
This entry was posted in Awareness, JHS/H-EDS, Research Articles and tagged . Bookmark the permalink.

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