Author Archives: Hypermobility Syndrome India

About Hypermobility Syndrome India

I am an Indian woman with Ehlers Danlos Syndrome Hypermobility Type (EDS-HT or hEDS). I have been living with this disease all my life, and fighting the manifestations blindly without knowing why my body was a living demo of textbooks of different branches of medicine. Getting a diagnosis at 38 years of age opened up the path for my emotional healing. I aim to raise awareness about hEDS, chronic pain, invisible illnesses, mental illnesses and invisible disabilities, and share my experiences through my blogs.

Types of Pain

Originally posted on Mast Cells & Collagen Behaving Badly:
Following on from my blog post on Types of Fatigue I was asked by one of my followers to do a post on the various types of pain I experience.  When…

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Chronic Pain India – A new initiative

There is a new initiative by chronic pain warriors in India which is an ambitious project to build a community of support and a platform for awareness and advocacy for people suffering from chronic pain and invisible illnesses in India. … Continue reading

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Where do missing zebras go?

After I got my diagnosis, I researched online about hypermobility disorders and a good deal of useful information I found was on the blogs of fellow zebras. As you read someone’s blog, sometimes from years ago, and follow their story … Continue reading

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New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here. What is HSD? Read … Continue reading

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Exercising in hEDS

An excellent talk I highly recommend – I found it very helpful. Watch it full-screen, I am sure if you are new to this new to this condition and are watching it for the first time, you will want to … Continue reading

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Some old talks on EDS/hEDS

New changes are happening in the diagnostic criteria of EDS, hEDS and hypermobility spectrum disorders. I would like to share some old talks again that are extremely informative and must-watch for anyone wanting to know about these  conditions. Dr. Derek … Continue reading

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Reblog: Lily’s blogpost on Proprioception

Proprioception – http://wp.me/pno7z-DA

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Latest Updates: Feb 2017: A Framework for the Classification of Joint Hypermobility and Related Conditions

A Framework for the Classification of Joint Hypermobility and Related Conditions Authors: MARCO CASTORI,* BRAD TINKLE, HOWARD LEVY, RODNEY GRAHAME, FRANSISKA MALFAIT, AND ALAN HAKIM Am J Med Genet Part C Semin Med Genet 9999C:1–10. -A new classification system for … Continue reading

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Latest Updates: Feb 2017: Hypermobile Ehlers–Danlos Syndrome:Clinical Description and Natural History

Top experts on HEDS come together in this review article to describe what is known and understood so far about the cause, presentation and management of HEDS. Hypermobile Ehlers–Danlos Syndrome (a.k.a. Ehlers–Danlos Syndrome Type III and Ehlers–Danlos Syndrome Hypermobility Type): … Continue reading

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Not just the joints: A review article on the comorbidities of JHS/HEDS

Ehlers–Danlos Syndrome – Hypermobility Type: A Much Neglected Multisystemic Disorder Yael Gazit, Giris Jacob, and Rodney Grahame. Excerpt from abstract: Throughout the years, extra-articular manifestations have been described, including cardiovascular, autonomic nervous system, gastrointestinal, hematologic, ocular, gynecologic, neurologic, and psychiatric … Continue reading

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