Category Archives: Awareness

New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here. What is HSD? Read … Continue reading

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Exercising in hEDS

An excellent talk I highly recommend – I found it very helpful. Watch it full-screen, I am sure if you are new to this new to this condition and are watching it for the first time, you will want to … Continue reading

Posted in Awareness, Daily Life Challenges/Tips, JHS/H-EDS, Pain Management, Physical Therapy, Treatment | Tagged , , , | 13 Comments

Some old talks on EDS/hEDS

New changes are happening in the diagnostic criteria of EDS, hEDS and hypermobility spectrum disorders. I would like to share some old talks again that are extremely informative and must-watch for anyone wanting to know about these  conditions. Dr. Derek … Continue reading

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Latest Updates: Feb 2017: Hypermobile Ehlers–Danlos Syndrome:Clinical Description and Natural History

Top experts on HEDS come together in this review article to describe what is known and understood so far about the cause, presentation and management of HEDS. Hypermobile Ehlers–Danlos Syndrome (a.k.a. Ehlers–Danlos Syndrome Type III and Ehlers–Danlos Syndrome Hypermobility Type): … Continue reading

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Not just the joints: A review article on the comorbidities of JHS/HEDS

Ehlers–Danlos Syndrome – Hypermobility Type: A Much Neglected Multisystemic Disorder Yael Gazit, Giris Jacob, and Rodney Grahame. Excerpt from abstract: Throughout the years, extra-articular manifestations have been described, including cardiovascular, autonomic nervous system, gastrointestinal, hematologic, ocular, gynecologic, neurologic, and psychiatric … Continue reading

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The difference between healthy and unhealthy yoga back bends.(Link: Gokhale Method Institute Blog)

In Yoga: Bend Back, Don’t Swayback! https://gokhalemethod.com/blog/62807

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Scientists uncover genetic explanation that could explain mechanisms in EDS, POTS and MACS

https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading

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Review Article: Hypermobility syndromes and chronic or recurrent MSK pain in children (Oct 2015)

When flexibility is not necessarily a virtue: hypermobility syndromes and chronic or recurrent musculoskeletal pain in children (PDF link) By Marco Cattalini, Raju Khubchandani, and Rolando Cimaz Pediatric Clinic, University of Brescia and Spedali Civili di Brescia, Brescia, Italy Pediatric Rheumatology Clinic, Department of Paediatrics, Jaslok … Continue reading

Posted in Awareness, Hypermobility Syndrome in Children, JHS/H-EDS, Research Articles, Uncategorized | Tagged , , , , | Leave a comment

A Parable for HEDS

#EDS   #Hypermobility Syndrome   #HMS   #JHS   #EDS-HT   from Blogger http://ift.tt/2agahql

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Discovering Self-Compassion – Pain(t)h.D.

On Self compassion in chronic illness… A few days ago, I wrote a contemplative post, wondering how much I might be catastrophizing my own pain and giving it more attention than it needed. … In many ways, I feel the … Continue reading

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