Category Archives: Daily Life Challenges/Tips

Exercising in hEDS

An excellent talk I highly recommend – I found it very helpful. Watch it full-screen, I am sure if you are new to this new to this condition and are watching it for the first time, you will want to … Continue reading

Posted in Awareness, Daily Life Challenges/Tips, JHS/H-EDS, Pain Management, Physical Therapy, Treatment | Tagged , , , | 13 Comments

Reblog: Exercise for Chronic Pain

If you have a chronic pain illness and you have already started to exercise, are making plans to exercise, or are not well enough to exercise now but hope to in the future, Cass has some tips for you: Exercise … Continue reading

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Link: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

Top 10 Nutrition Tips and Resources for Optimal Health with EDS By Kendra Neilsen Myles at strengthflexibilityhealtheds.com/ Source: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

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Reblog: 8 biggest POTS myths

8 Biggest POTS Myths By EMILY CODAY There are a lot of common misconceptions about POTS. There are ones I get from doctors, nurses, family, friends, and even other POTS patients. Remember that most of our POTS symptoms are different and that … Continue reading

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Reblog: Parenting While Disabled – The Disability File

Some great tips from Erin on parenting a small child when you are disabled or chronically ill. As the parent of a highly energetic six year old, I often feel like my life consists of shuttling him from one activity … Continue reading

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Link: Chronic Pain, Cancelled Plans and Friends

Every chronically ill person, especially young people, regularly faces situations where they have to say no to many plans, turn up late for things and cancel on others at the last moment. They regularly face the unpleasant prospect of having … Continue reading

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On success in chronic illness

Originally posted on Alex and Ellen's T(alkS)Pot:
Mornings like this I find myself floundering. For the second time with this illness, I find myself detached from the outside world. After months of striving to balance an ever- decreasing…

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Video Link: The Benefits of Good Posture

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The Privilege of Independence

Originally posted on Chronically Ridiculous:
When my parents dropped me off for my first day of camp when I was five they expected it to be tough. It was tough, but just for them. I was ready to leave and…

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What they didn’t tell me about Hypermobility

Originally posted on Misadventures of Donau:
Before getting too deep, let me mention that Hypermobility is not necessarily uncommon, but those who suffer from pain brought on by the condition are very few and far between. So what IS Hypermobility?…

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