Category Archives: External Links

New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here. What is HSD? Read … Continue reading

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The difference between healthy and unhealthy yoga back bends.(Link: Gokhale Method Institute Blog)

In Yoga: Bend Back, Don’t Swayback! https://gokhalemethod.com/blog/62807

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The epidemic of “It’s all in your head”

And how things are going to get difficult for EDS people in 2018.

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Reblog: Exercise for Chronic Pain

If you have a chronic pain illness and you have already started to exercise, are making plans to exercise, or are not well enough to exercise now but hope to in the future, Cass has some tips for you: Exercise … Continue reading

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Link: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

Top 10 Nutrition Tips and Resources for Optimal Health with EDS By Kendra Neilsen Myles at strengthflexibilityhealtheds.com/ Source: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

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Reblog: When to Suspect EDS | Oh TWIST

A very informative and comprehensive article by Jan Groh on her blog Oh Twist. When to suspect EDS

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Reblog: How to Cope With Losing Friends After Diagnosis

A great post by Katie: If even you don’t understand your illness, how can you expect others to do the same? … You cannot control the way people view you and what people think about you. You cannot control their … Continue reading

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Link: Chronic Pain, Cancelled Plans and Friends

Every chronically ill person, especially young people, regularly faces situations where they have to say no to many plans, turn up late for things and cancel on others at the last moment. They regularly face the unpleasant prospect of having … Continue reading

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Reblog: Endlessly Exhausted Zebra – The Disability File

For reasons not entirely understood, a high percentage of people with Ehlers-Danlos Syndrome experience chronic fatigue.  Whether it’s officially diagnosed as chronic fatigue syndrome or not, it’s a very real phenomenon that impacts daily life.  It can cause memory loss, … Continue reading

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What makes a seemingly well person with Joint Hypermobility Syndrome so sick?

“Ehlers-Danlos Syndrome: A Multi-dimensional Disorder” by Dr. Clair A. FrancomanoA very informative talk on all the things that go wrong in the body of a person with Joint Hypermobility Syndrome (JHS, aka EDS-HT). A rather comprehensive talk of 37 minutes, … Continue reading

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