Category Archives: Recommended Reading

New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here. What is HSD? Read … Continue reading

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Latest Updates: Feb 2017: A Framework for the Classification of Joint Hypermobility and Related Conditions

A Framework for the Classification of Joint Hypermobility and Related Conditions Authors: MARCO CASTORI,* BRAD TINKLE, HOWARD LEVY, RODNEY GRAHAME, FRANSISKA MALFAIT, AND ALAN HAKIM Am J Med Genet Part C Semin Med Genet 9999C:1–10. -A new classification system for … Continue reading

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The difference between healthy and unhealthy yoga back bends.(Link: Gokhale Method Institute Blog)

In Yoga: Bend Back, Don’t Swayback! https://gokhalemethod.com/blog/62807

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Link: Hypermobility, Hyperactivity of Autonomic Nervous System and Psychopathology

A recently published doctoral thesis by Jessica Anne ECCLES has studied “the relevance of joint hypermobility and autonomic symptoms, particularly orthostatic intolerance, to clinical psychopathology.

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Reblog: 8 biggest POTS myths

8 Biggest POTS Myths By EMILY CODAY There are a lot of common misconceptions about POTS. There are ones I get from doctors, nurses, family, friends, and even other POTS patients. Remember that most of our POTS symptoms are different and that … Continue reading

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Link: EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem – Dr. Derek Neilson

“EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem” is an informative talk by Dr. Neilson that touches on many important issues related to EDS-HT as well as  presents some very important updates regarding this condition that I have … Continue reading

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Reblog: When to Suspect EDS | Oh TWIST

A very informative and comprehensive article by Jan Groh on her blog Oh Twist. When to suspect EDS

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Link: Too Tired: EDS and Fatigue

Chronic pain and fatigue are two most severe problems present in EDS-HT patients that affect daily life considerably. Many relevant studies related to fatigue in EDS-HT and management strategies are enumerated and referenced in the presentation, “Too Tired: EDS and Fatigue” … Continue reading

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The Role of Narrative in Healing (Part-2)

How the book “Narrative medicine: honoring the stories of illness” by Dr. Rita Charon helped me in healing myself. Continue reading

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An Email for Raising Awareness about Ehlers Danlos Syndrome

An email written by blogger hejyork to her friends and colleagues to increase their awareness about Ehlers Danlos Syndrome.   Source: Ehlers Danlos Syndrome

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