Category Archives: Uncategorized

Reblog: Lily’s blogpost on Proprioception

Proprioception – http://wp.me/pno7z-DA

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Latest Updates: Feb 2017: A Framework for the Classification of Joint Hypermobility and Related Conditions

A Framework for the Classification of Joint Hypermobility and Related Conditions Authors: MARCO CASTORI,* BRAD TINKLE, HOWARD LEVY, RODNEY GRAHAME, FRANSISKA MALFAIT, AND ALAN HAKIM Am J Med Genet Part C Semin Med Genet 9999C:1–10. -A new classification system for … Continue reading

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The difference between healthy and unhealthy yoga back bends.(Link: Gokhale Method Institute Blog)

In Yoga: Bend Back, Don’t Swayback! https://gokhalemethod.com/blog/62807

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Scientists uncover genetic explanation that could explain mechanisms in EDS, POTS and MACS

https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading

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Things which make my day easier

Originally posted on Unlocking Words:
Someone recently found my blog by looking for “ehlers danlos can’t open jars” and I hope they found some help (try dycem jar and bottle openers).  I wrote a post in 2014 (2014, can you…

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Review Article: Hypermobility syndromes and chronic or recurrent MSK pain in children (Oct 2015)

When flexibility is not necessarily a virtue: hypermobility syndromes and chronic or recurrent musculoskeletal pain in children (PDF link) By Marco Cattalini, Raju Khubchandani, and Rolando Cimaz Pediatric Clinic, University of Brescia and Spedali Civili di Brescia, Brescia, Italy Pediatric Rheumatology Clinic, Department of Paediatrics, Jaslok … Continue reading

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Reblog: Be here today, be here NOW

Originally posted on My Tape Story:
The following video got me writing today’s blogpost. I hope you guys are able to view the video but if not, look for “Be grateful for what you have” video by Bright Side on…

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The B & B Scores

Originally posted on Mast Cells & Collagen Behaving Badly:
If you’re suspected of having Ehlers-Danlos Syndrome you’re likely to be tested via the Beighton Score.  This looks at certain joints in the body and how hypermobile they are: Elbow bends…

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Friends and chronic pain

Originally posted on Unlocking Words:
I apologise if I’ve already talked about this, I’m currently on more than normal painkillers and my hands are too wrecked to search through old posts. I got an email today which nearly made me…

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