The content of this blog (information including text, images, video, graphics, and other information) does not constitute medical advice of any kind, and is not intended to be, and should not be, used to diagnose or treatment for a medical condition without consulting your physician. Do not attempt to use any information here as a substitute for the advice of your physician or other medical professional. Since I often mention delayed/non diagnosis in cases of JHS-HEDS in my blog, my intention is to make readers aware of this disease if they do not know about it and to provide support and information as a fellow sufferer if the reader has this condition. The content of my blog is not an attempt to offer or render a medical opinion or otherwise engage in the “practice of medicine”. I also cannot answer readers’ queries to offer a “medical opinion”, even if they have symptoms similar to me. The readers must seek the advice of their physician or other qualified health provider with any questions they may have regarding their medical conditions. I also do not advise anyone to disregard professional medical advice or delay in seeking it because of something you have read on this blog.
My intention here on this blog is to provide readers with information regarding my own conditions and information on related conditions, including content I discover on the net (websites, journal articles, books and other content). I cannot assure that any statement contained or cited in this blog related to medical matters is true, correct, precise, up-to-date or relevant to a reader’s condition. If you are a patient of JHS-HEDS or suspect that you have it, you must seek medical advice. I also do not endorse or recommend any particular or specific treatment/doctor/ product/ hospital in the way of a medical opinion. I mention a few things that have worked for me or for others, as mentioned by them on the net. I have written a page with a list of medical professionals who have shown familiarity with JHS-HEDS through their work and personal communications with me. I certainly do not vouch for them, their effectiveness in treating you, or them agreeing to treat you, in any way.
I do not have any commercial interest in any product or doctor or hospital of which/whom I have spoken positively in any post. If you are dissatisfied with your present doctor(s) and suspect you might have JHS-HEDS, you must seek the opinion of other rheumatologists/ orthopedists, who are more aware of these connective tissue disorders. My blog is also about self-advocacy, that is, we should take more active interest in the health care we receive, including the tests and diagnoses, the treatment options and disability aids/support. As disabled people, even if we require the support of others in many ways, we still hold the right to life decisions, and decisions related to medical care made available to us. I do not intend for you to self diagnose and self-medicate, and certainly not for you to launch upon physiotherapy without expert guidance. My intention is that instead of feeling powerless and hopeless (because of the way doctors and society might be treating you), you should take it upon yourself to feel empowered and insist on better medical care, even if that requires referrals and more expert consultations.