Tag Archives: Challenges

Daily Life

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Reblog: Saving Face with a Chronic Illness – by Fibronacci at Pain(t)h.D.

I can relate to this so much. A zombie-like existence in a dystopian reality only I could see sums up nicely my 12 years of academic/work life before I crashed completely and left. I often wonder what sort of support … Continue reading

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Link: Chronic Pain, Cancelled Plans and Friends

Every chronically ill person, especially young people, regularly faces situations where they have to say no to many plans, turn up late for things and cancel on others at the last moment. They regularly face the unpleasant prospect of having … Continue reading

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Reblog: Seeing Possibility by Jessi

This beautiful post will fill you with hope for a day beyond today, when all your yesterdays have been lost to a chronic illness. Jessi begins with: During my descent into illness, all I could see was what was being taken … Continue reading

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Video Link: Struggling to be me with chronic pain

 A 10 minute video on living with chronic pain. The script is drawn from peoples’ own words about what it is like to live with chronic pain and is performed by an actor. The source material is from 77 qualitative … Continue reading

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Travelling with H-EDS/JHS (and many other chronic illnesses)

Blog Break I am traveling now, and travels are always a difficult time for people with chronic diseases and disabilities, visible or invisible. I wanted to share what traveling entails for me.  

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Chronic Pain in JHS

Ah, me! the Prison House of Pain!—what lessons there are bought!— Lessons of a sublimer strain Than any elsewhere taught. – Florence Earle Coates, Poems, Volume Two, The House of Pain Chronic pain is a pain that lasts beyond three … Continue reading

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Hands and arms: Little things that become challenges

If the joints of the elbows, wrists and fingers are injured or weak due to hypermobility syndrome, the person finds many day to day and mundane activities difficult or painful. They may be embarrassed to ask for help because these … Continue reading

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