Posts you might like
- Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed?
- How does Hypermobility Syndrome manifest clinically?
- The case for renaming Hypermobility Syndrome
- Hypermobility: An Indian Perspective
- Yoga; a double edged sword in H-EDS/JHS
- Joint hypermobility Syndrome is not Just Flexibility
- Chronic Pain in JHS
- When is Fatigue a Disease?
- Healing the bitter core
- How much pain?
- Losing My Cores
- How long is your X-file of diagnoses?
About this blog
Thank you for visiting my blog.
I have Hypermobility Syndrome and I blog about things relevant to this little known condition to raise awareness about it. The posts here are reblogs of posts by many WP bloggers and selected posts from my primary blog at http://jhs-heds-india.blogspot.com.
I am grateful for all the information and support I have received from fellow zebras and hope that you may find something useful on my blog.
Tag Archives: Challenges
I can relate to this so much. A zombie-like existence in a dystopian reality only I could see sums up nicely my 12 years of academic/work life before I crashed completely and left. I often wonder what sort of support … Continue reading
This beautiful post will fill you with hope for a day beyond today, when all your yesterdays have been lost to a chronic illness. Jessi begins with: During my descent into illness, all I could see was what was being taken … Continue reading
A 10 minute video on living with chronic pain. The script is drawn from peoples’ own words about what it is like to live with chronic pain and is performed by an actor. The source material is from 77 qualitative … Continue reading
Blog Break I am traveling now, and travels are always a difficult time for people with chronic diseases and disabilities, visible or invisible. I wanted to share what traveling entails for me.
Ah, me! the Prison House of Pain!—what lessons there are bought!— Lessons of a sublimer strain Than any elsewhere taught. – Florence Earle Coates, Poems, Volume Two, The House of Pain Chronic pain is a pain that lasts beyond three … Continue reading
If the joints of the elbows, wrists and fingers are injured or weak due to hypermobility syndrome, the person finds many day to day and mundane activities difficult or painful. They may be embarrassed to ask for help because these … Continue reading