Posts you might like
- Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed?
- How does Hypermobility Syndrome manifest clinically?
- The case for renaming Hypermobility Syndrome
- Hypermobility: An Indian Perspective
- Yoga; a double edged sword in H-EDS/JHS
- Joint hypermobility Syndrome is not Just Flexibility
- Chronic Pain in JHS
- When is Fatigue a Disease?
- Healing the bitter core
- How much pain?
- Losing My Cores
- How long is your X-file of diagnoses?
About this blog
Thank you for visiting my blog.
I have Hypermobility Syndrome and I blog about things relevant to this little known condition to raise awareness about it. The posts here are reblogs of posts by many WP bloggers and selected posts from my primary blog at http://jhs-heds-india.blogspot.com.
I am grateful for all the information and support I have received from fellow zebras and hope that you may find something useful on my blog.
Tag Archives: Diagnosis
Link: EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem – Dr. Derek Neilson
“EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem” is an informative talk by Dr. Neilson that touches on many important issues related to EDS-HT as well as presents some very important updates regarding this condition that I have … Continue reading
Hurting all over (Think like a doctor, the diagnosis column of the NY Times Magazine)
You won’t see it unless you look for it. True for most of the subtle signs of hypermobility syndrome (EDS-HT).An important sign is a mild expression of marfanoid body type, one of the features that EDS-HT shares with other hereditary … Continue reading
Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed? I read an article by Jan Groh, EDS patient & support group leader at http://www.chronicpainpartners.com/what-is-eds/ An excerpt: Only 5% of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed*. It’s been estimated that EDS … Continue reading
See the full presentation here “Crushing” “Depressing” “Devastating” “Dispiriting” “Demoralizing” People who have been diagnosed with hypermobility syndrome will use these words to describe the pre-diagnosis period. I have seen the incomprehension and incredulity in the eyes of friends, heard … Continue reading