Posts you might like
- Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed?
- How does Hypermobility Syndrome manifest clinically?
- The case for renaming Hypermobility Syndrome
- Hypermobility: An Indian Perspective
- Yoga; a double edged sword in H-EDS/JHS
- Joint hypermobility Syndrome is not Just Flexibility
- Chronic Pain in JHS
- When is Fatigue a Disease?
- Healing the bitter core
- How much pain?
- Losing My Cores
- How long is your X-file of diagnoses?
About this blog
Thank you for visiting my blog.
I have Hypermobility Syndrome and I blog about things relevant to this little known condition to raise awareness about it. The posts here are reblogs of posts by many WP bloggers and selected posts from my primary blog at http://jhs-heds-india.blogspot.com.
I am grateful for all the information and support I have received from fellow zebras and hope that you may find something useful on my blog.
Tag Archives: Doctors
Hurting all over (Think like a doctor, the diagnosis column of the NY Times Magazine)
Today is Rare Disease Day. Rare diseases are defined by most organizations as those diseases that have a low prevalence. While EDS-HT is considered a rare disease, there are many recent studies that suggest a higher prevalence of this condition and … Continue reading
“Science may have found a cure for most evils; but it has found no remedy for the worst of them all – the apathy of human beings.” ― Helen Keller My thoughts related to my invisible illness often revolve around … Continue reading
A very interesting post written by Dr. Rob Lamberts in his blog Musings of a distractible mind, which has generated a lot of discussion around the web, as well as personal and touching stories shared by readers in comments. A … Continue reading
Hypermobility of joints (JHM) is not a disease. It is a feature of joints in which the range of movement at the joint is more than expected or normal. It can arise from many factors, genetic and acquired. What is … Continue reading
Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed? I read an article by Jan Groh, EDS patient & support group leader at http://www.chronicpainpartners.com/what-is-eds/ An excerpt: Only 5% of Ehlers-Danlos Syndrome (EDS) sufferers are correctly diagnosed*. It’s been estimated that EDS … Continue reading