Tag Archives: EDS-HT

Some old talks on EDS/hEDS

New changes are happening in the diagnostic criteria of EDS, hEDS and hypermobility spectrum disorders. I would like to share some old talks again that are extremely informative and must-watch for anyone wanting to know about these  conditions. Dr. Derek … Continue reading

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Scientists uncover genetic explanation that could explain mechanisms in EDS, POTS and MACS

https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading

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Review Article: Hypermobility syndromes and chronic or recurrent MSK pain in children (Oct 2015)

When flexibility is not necessarily a virtue: hypermobility syndromes and chronic or recurrent musculoskeletal pain in children (PDF link) By Marco Cattalini, Raju Khubchandani, and Rolando Cimaz Pediatric Clinic, University of Brescia and Spedali Civili di Brescia, Brescia, Italy Pediatric Rheumatology Clinic, Department of Paediatrics, Jaslok … Continue reading

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The epidemic of “It’s all in your head”

And how things are going to get difficult for EDS people in 2018.

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Information booklet for JHS/HEDS in kids, part – 2

Last month, I made a brochure (Part 1) aiming to provide information to school teachers about what is JHS/HEDS and how it affects children.The brochure in this post is the second in the series, and offers tips to teachers on how … Continue reading

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Link: Hypermobility, Hyperactivity of Autonomic Nervous System and Psychopathology

A recently published doctoral thesis by Jessica Anne ECCLES has studied “the relevance of joint hypermobility and autonomic symptoms, particularly orthostatic intolerance, to clinical psychopathology.

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EDS Awareness Month: Information booklet for JHS/HEDS in kids

May is EDS awareness month. I have been mulling over what sort of a post would contribute to raising awareness about EDS. I think people who read EDS related blogs are already aware of it because of some sort of … Continue reading

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Reblog: Saving Face with a Chronic Illness – by Fibronacci at Pain(t)h.D.

I can relate to this so much. A zombie-like existence in a dystopian reality only I could see sums up nicely my 12 years of academic/work life before I crashed completely and left. I often wonder what sort of support … Continue reading

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Link: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

Top 10 Nutrition Tips and Resources for Optimal Health with EDS By Kendra Neilsen Myles at strengthflexibilityhealtheds.com/ Source: Top 10 Nutrition Tips and Resources for Optimal Health with EDS

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Link: EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem – Dr. Derek Neilson

“EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem” is an informative talk by Dr. Neilson that touches on many important issues related to EDS-HT as well as  presents some very important updates regarding this condition that I have … Continue reading

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