Tag Archives: Information

New Updates on HSD, JHS, and h-EDS (2017)

The new definitions, terminology and criteria for a better understanding of joint hypermobility disorders are here (2017). All the relevant links to articles in the Ehlers-Danlos Society website can be seen in one place: click here. What is HSD? Read … Continue reading

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Latest Updates: Feb 2017: A Framework for the Classification of Joint Hypermobility and Related Conditions

A Framework for the Classification of Joint Hypermobility and Related Conditions Authors: MARCO CASTORI,* BRAD TINKLE, HOWARD LEVY, RODNEY GRAHAME, FRANSISKA MALFAIT, AND ALAN HAKIM Am J Med Genet Part C Semin Med Genet 9999C:1–10. -A new classification system for … Continue reading

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Latest Updates: Feb 2017: Hypermobile Ehlers–Danlos Syndrome:Clinical Description and Natural History

Top experts on HEDS come together in this review article to describe what is known and understood so far about the cause, presentation and management of HEDS. Hypermobile Ehlers–Danlos Syndrome (a.k.a. Ehlers–Danlos Syndrome Type III and Ehlers–Danlos Syndrome Hypermobility Type): … Continue reading

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Not just the joints: A review article on the comorbidities of JHS/HEDS

Ehlers–Danlos Syndrome – Hypermobility Type: A Much Neglected Multisystemic Disorder Yael Gazit, Giris Jacob, and Rodney Grahame. Excerpt from abstract: Throughout the years, extra-articular manifestations have been described, including cardiovascular, autonomic nervous system, gastrointestinal, hematologic, ocular, gynecologic, neurologic, and psychiatric … Continue reading

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Scientists uncover genetic explanation that could explain mechanisms in EDS, POTS and MACS

https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading

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Review Article: Hypermobility syndromes and chronic or recurrent MSK pain in children (Oct 2015)

When flexibility is not necessarily a virtue: hypermobility syndromes and chronic or recurrent musculoskeletal pain in children (PDF link) By Marco Cattalini, Raju Khubchandani, and Rolando Cimaz Pediatric Clinic, University of Brescia and Spedali Civili di Brescia, Brescia, Italy Pediatric Rheumatology Clinic, Department of Paediatrics, Jaslok … Continue reading

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Information booklet for JHS/HEDS in kids, part – 2

Last month, I made a brochure (Part 1) aiming to provide information to school teachers about what is JHS/HEDS and how it affects children.The brochure in this post is the second in the series, and offers tips to teachers on how … Continue reading

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Link: Hypermobility, Hyperactivity of Autonomic Nervous System and Psychopathology

A recently published doctoral thesis by Jessica Anne ECCLES has studied “the relevance of joint hypermobility and autonomic symptoms, particularly orthostatic intolerance, to clinical psychopathology.

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EDS Awareness Month: Information booklet for JHS/HEDS in kids

May is EDS awareness month. I have been mulling over what sort of a post would contribute to raising awareness about EDS. I think people who read EDS related blogs are already aware of it because of some sort of … Continue reading

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Link: EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem – Dr. Derek Neilson

“EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem” is an informative talk by Dr. Neilson that touches on many important issues related to EDS-HT as well as  presents some very important updates regarding this condition that I have … Continue reading

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