Posts you might like
- Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed?
- How does Hypermobility Syndrome manifest clinically?
- The case for renaming Hypermobility Syndrome
- Hypermobility: An Indian Perspective
- Yoga; a double edged sword in H-EDS/JHS
- Joint hypermobility Syndrome is not Just Flexibility
- Chronic Pain in JHS
- When is Fatigue a Disease?
- Healing the bitter core
- How much pain?
- Losing My Cores
- How long is your X-file of diagnoses?
About this blog
Thank you for visiting my blog.
I have Hypermobility Syndrome and I blog about things relevant to this little known condition to raise awareness about it. The posts here are reblogs of posts by many WP bloggers and selected posts from my primary blog at http://jhs-heds-india.blogspot.com.
I am grateful for all the information and support I have received from fellow zebras and hope that you may find something useful on my blog.
Tag Archives: Information
Latest Updates: Feb 2017: A Framework for the Classification of Joint Hypermobility and Related Conditions
A Framework for the Classification of Joint Hypermobility and Related Conditions Authors: MARCO CASTORI,* BRAD TINKLE, HOWARD LEVY, RODNEY GRAHAME, FRANSISKA MALFAIT, AND ALAN HAKIM Am J Med Genet Part C Semin Med Genet 9999C:1–10. -A new classification system for … Continue reading
Latest Updates: Feb 2017: Hypermobile Ehlers–Danlos Syndrome:Clinical Description and Natural History
Top experts on HEDS come together in this review article to describe what is known and understood so far about the cause, presentation and management of HEDS. Hypermobile Ehlers–Danlos Syndrome (a.k.a. Ehlers–Danlos Syndrome Type III and Ehlers–Danlos Syndrome Hypermobility Type): … Continue reading
Ehlers–Danlos Syndrome – Hypermobility Type: A Much Neglected Multisystemic Disorder Yael Gazit, Giris Jacob, and Rodney Grahame. Excerpt from abstract: Throughout the years, extra-articular manifestations have been described, including cardiovascular, autonomic nervous system, gastrointestinal, hematologic, ocular, gynecologic, neurologic, and psychiatric … Continue reading
https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading
When flexibility is not necessarily a virtue: hypermobility syndromes and chronic or recurrent musculoskeletal pain in children (PDF link) By Marco Cattalini, Raju Khubchandani, and Rolando Cimaz Pediatric Clinic, University of Brescia and Spedali Civili di Brescia, Brescia, Italy Pediatric Rheumatology Clinic, Department of Paediatrics, Jaslok … Continue reading
Last month, I made a brochure (Part 1) aiming to provide information to school teachers about what is JHS/HEDS and how it affects children.The brochure in this post is the second in the series, and offers tips to teachers on how … Continue reading
A recently published doctoral thesis by Jessica Anne ECCLES has studied “the relevance of joint hypermobility and autonomic symptoms, particularly orthostatic intolerance, to clinical psychopathology.
May is EDS awareness month. I have been mulling over what sort of a post would contribute to raising awareness about EDS. I think people who read EDS related blogs are already aware of it because of some sort of … Continue reading
Link: EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem – Dr. Derek Neilson
“EDS, Hypermobility Type: Evolving Perspectives on a Poorly Understood Problem” is an informative talk by Dr. Neilson that touches on many important issues related to EDS-HT as well as presents some very important updates regarding this condition that I have … Continue reading