Tag Archives: Life with hypermobility syndrome

Discovering Self-Compassion – Pain(t)h.D.

On Self compassion in chronic illness… A few days ago, I wrote a contemplative post, wondering how much I might be catastrophizing my own pain and giving it more attention than it needed. … In many ways, I feel the … Continue reading

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Reblog: Parenting While Disabled – The Disability File

Some great tips from Erin on parenting a small child when you are disabled or chronically ill. As the parent of a highly energetic six year old, I often feel like my life consists of shuttling him from one activity … Continue reading

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Link: Chronic Pain, Cancelled Plans and Friends

Every chronically ill person, especially young people, regularly faces situations where they have to say no to many plans, turn up late for things and cancel on others at the last moment. They regularly face the unpleasant prospect of having … Continue reading

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Reblog: Endlessly Exhausted Zebra – The Disability File

For reasons not entirely understood, a high percentage of people with Ehlers-Danlos Syndrome experience chronic fatigue.  Whether it’s officially diagnosed as chronic fatigue syndrome or not, it’s a very real phenomenon that impacts daily life.  It can cause memory loss, … Continue reading

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On success in chronic illness

Originally posted on Alex and Ellen's T(alkS)Pot:
Mornings like this I find myself floundering. For the second time with this illness, I find myself detached from the outside world. After months of striving to balance an ever- decreasing…

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What they didn’t tell me about Hypermobility

Originally posted on Misadventures of Donau:
Before getting too deep, let me mention that Hypermobility is not necessarily uncommon, but those who suffer from pain brought on by the condition are very few and far between. So what IS Hypermobility?…

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Protect your arms and hands

Joint hypermobility syndrome (JHS) affect the connective tissues (the stuff that holds us together and binds one thing to another in the body) of the body and leads to multi-site painful conditions. In particular, JHS causes laxity of ligaments (the … Continue reading

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Travelling with H-EDS/JHS (and many other chronic illnesses)

Blog Break I am traveling now, and travels are always a difficult time for people with chronic diseases and disabilities, visible or invisible. I wanted to share what traveling entails for me.  

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Hands and arms: Little things that become challenges

If the joints of the elbows, wrists and fingers are injured or weak due to hypermobility syndrome, the person finds many day to day and mundane activities difficult or painful. They may be embarrassed to ask for help because these … Continue reading

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Before and After

“Normal” people, that is, people without a chronic illness will find it incredibly difficult to even try to imagine what the life of a chronically ill person is like. What the limitations mean in practical terms. The “before the chronic … Continue reading

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