Tag Archives: Pain

Exercising in hEDS

An excellent talk I highly recommend – I found it very helpful. Watch it full-screen, I am sure if you are new to this new to this condition and are watching it for the first time, you will want to … Continue reading

Posted in Awareness, Daily Life Challenges/Tips, JHS/H-EDS, Pain Management, Physical Therapy, Treatment | Tagged , , , | 13 Comments

Reblog: Seeing Possibility by Jessi

This beautiful post will fill you with hope for a day beyond today, when all your yesterdays have been lost to a chronic illness. Jessi begins with: During my descent into illness, all I could see was what was being taken … Continue reading

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Protect your arms and hands

Joint hypermobility syndrome (JHS) affect the connective tissues (the stuff that holds us together and binds one thing to another in the body) of the body and leads to multi-site painful conditions. In particular, JHS causes laxity of ligaments (the … Continue reading

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Video Link: Struggling to be me with chronic pain

 A 10 minute video on living with chronic pain. The script is drawn from peoples’ own words about what it is like to live with chronic pain and is performed by an actor. The source material is from 77 qualitative … Continue reading

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How much pain?

Pain is highly subjective and a complex sensation and phenomenon. There are many scales and questionnaires that attempt to objectively quantify pain. A well-known pain scale is the McGill Pain Index.

Posted in Chronic Illness, External Links, JHS/H-EDS, Pain Management, Recommended Reading | Tagged , , | 1 Comment

Link: Heating Pad or Ice Pack for Pain?

There are all sorts of products and ideas for relieving pain that use either heat or cold. If you usually use either of the two approaches: heat and cold, it may even sound counterintuitive that the other approach can also … Continue reading

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Yoga – a double edged sword in H-EDS/JHS

Yoga is one of the most effective system of fitness approaches to not just physical but also mental well-being. If you have H-EDS/JHS and suffer from chronic musculoskeletal pain, there is a likelihood of you gravitating to yoga at some point … Continue reading

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Chronic Pain in JHS

Ah, me! the Prison House of Pain!—what lessons there are bought!— Lessons of a sublimer strain Than any elsewhere taught. – Florence Earle Coates, Poems, Volume Two, The House of Pain Chronic pain is a pain that lasts beyond three … Continue reading

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Hands and arms: Little things that become challenges

If the joints of the elbows, wrists and fingers are injured or weak due to hypermobility syndrome, the person finds many day to day and mundane activities difficult or painful. They may be embarrassed to ask for help because these … Continue reading

Posted in Daily Life Challenges/Tips, JHS/H-EDS, Zebra Narratives | Tagged , , , | 2 Comments