Categories
Posts you might like
- Is Ehlers-Danlos Syndrome rare – or just rarely diagnosed?
- How does Hypermobility Syndrome manifest clinically?
- The case for renaming Hypermobility Syndrome
- Hypermobility: An Indian Perspective
- Yoga; a double edged sword in H-EDS/JHS
- Joint hypermobility Syndrome is not Just Flexibility
- Chronic Pain in JHS
- When is Fatigue a Disease?
- Healing the bitter core
- How much pain?
- Losing My Cores
- How long is your X-file of diagnoses?
About this blog
Thank you for visiting my blog.
I have Hypermobility Syndrome and I blog about things relevant to this little known condition to raise awareness about it. The posts here are reblogs of posts by many WP bloggers and selected posts from my primary blog at http://jhs-heds-india.blogspot.com.
I am grateful for all the information and support I have received from fellow zebras and hope that you may find something useful on my blog.
Web Resources
EDS Info
(This blog is one stop shop for extremely relevant articles related to Chronic Pain, EDS, and Fibromyalgia)Sci Hub
(Find the full-text of any research article for free using d.o.i.)Oh Twist
(A superbly informative and well-written blog on JHS/HEDS by a fellow zebra)Joint Hypermobility in Children
(Useful info related to JHS/HEDS in kids)Strength, Flexibililty & Health while Living with Ehlers-Danlos Syndrome
(Website by an inspiring EDS warrior packed with information and tips)Rare Diseases India
(Nothing much there)The Mighty
(Inspiring stories of chronic illness fighters)An updated critique on EDS-HT
(An educative article by an EDS expert)When to suspect EDS-HT
(Useful article by an EDS expert)Hypermobility Syndromes Association
(UK website for JHS/HEDS, has useful articles)EDNF Resource Guides
(USA website for EDS, has many useful resources including talks by renowned experts)Irish EDS & HMS
(Irish website for JHS/HEDS, filled with neatly presented information that is easily navigable. Check out the leaflets)-
Misc
