Blog Archives

Scientists uncover genetic explanation that could explain mechanisms in EDS, POTS and MACS

https://www.nih.gov/news-events/news-releases/nih-scientists-uncover-genetic-explanation-frustrating-syndrome Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. … Continue reading

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The epidemic of “It’s all in your head”

And how things are going to get difficult for EDS people in 2018.

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What makes a seemingly well person with Joint Hypermobility Syndrome so sick?

“Ehlers-Danlos Syndrome: A Multi-dimensional Disorder” by Dr. Clair A. FrancomanoA very informative talk on all the things that go wrong in the body of a person with Joint Hypermobility Syndrome (JHS, aka EDS-HT). A rather comprehensive talk of 37 minutes, … Continue reading

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IF YOU CAN’T CONNECT THE ISSUES, THINK CONNECTIVE TISSUES!

If you can’t connect the issues, think connective tissues!  Connecting the dots between Ehlers-Danlos Syndrome and related conditions. This presentation  by Dr. Heidi Collins is a must read for anyone wanting to know more about Ehlers-Danlos Syndrome. In particular, it … Continue reading

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Video Link: The Benefits of Good Posture

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